Benign Vagal Vesa Nerve

by Honey
(California)

I am glad that you have put up the information on Dysautonomia. Actually I have never heard of it before, however I suffer from it, but my doctor calls it a BENIGN VAGAL VESA NERVE.



I have a pacemaker due to my heart stopping and take proamatine for extremely low blood pressure. I am a professional ballet dancer,with a child so you can imagine my life.It can be difficult due to symptoms showing up,even when dancing and sometimes i can't get up in the morning.

I always have to have at least 1 hour of rest a day and after a particularly long season I always end up in bed for 3-4 days with extreme fatigue, muscle pain, burning. I always wonder if I am having a heart attack. So I feel like a burden to my family who have to take of me and at other times being yelled at and made to feel lazy at those times.

And to boot being severely constipated(found a cure for that which is green tea). I was told that this is very rare and most suffers are the elderly, yet I have suffered for most of my life, but found when I was 31 years old.(emergency room I flat lined).

I still dance,and am the Artistic Director of SMCB. I take a day at a time and hope I can get through it without an episode.

Hope this will help someone.

Honey